So interesting… so funny.   To see the same problems in Mexico that i see in Canada and that I hear about in other countries.   How difficult it is for human beings, including doctors and nurses, to understand, to recognize when death is nearing.  How difficult it is for us to put aside our options to intervene and to find out what the patient wants, what is possible for the patient and the family, and then, only then, to offer care options.

Today I met a person who was taking her last breaths, while an order for an xray sat at the end of her bed.  Why?  What good would this information do? How would the information change the care?  How would the family pay for the xray while also paying for the funeral, the transportation of the family to the city where the grandmother was taking her last breaths?

As palliative care specialists it is sometimes easier to recognize when death is approaching, perhaps because we arrive with fresh eyes, or perhaps because we are more familiar with the dying process… or perhaps because we are comfortable discussing goals of care with the patient and their family.

When we think about what we do in palliative care, perhaps we should say, ‘We talk with people about dying”.  Rather than suggesting that we help to manage symptoms.  Perhaps the most important thing we do is to open the door to conversations. Once the door is open, then we can discuss the other things that are possible.

It is wonderful to be here with Dr. Gustavo Montejo and his great team, including two other doctors, one social worker, one nurse, and many students.   I am grateful to learn from them!  It is wonderful (and difficult) to see that they are facing the same challenges in their city that we face in our city.  This little team provide care for the entire acute care hospital.

Kath

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This morning over breakfast at our lovely little Bed and Breakfast, we sat with a fellow who runs/teaches at the Hollywood Acting School (I am sure i have the wrong name for it), in San Francisco.  Actors, both experienced and novices attend workshops once or twice a week.  They are assigned parts in different screen scenes, then together with their fellow students they practice in the coming weeks, and return on their assigned day to perform.  Whether they are acting, directing, auditing, they participate in the show and in the feedback. The fellow said that the preparation with the team is as helpful as the actual feedback from the instructor. I could not help but wonder what my work would look like with that kind of practice and tutoring.

I am reminded of an article written by an experienced surgeon who asked a similar question… he was prompted to invite a retired surgeon whose practice he had admired watch him perform surgery with the goal of providing feedback, ideas.  The surgeon noticed this man writing copious notes, and wondered what he would have to say.  The retired surgeon provided feedback on details that the surgeon had not ever though of.  Ideas were generate on where to stand to increase the visibility for others on the team, how to use the light more effectively, ways to use instruments that decreased movement…. and so on.

Simple changes made a profound impact on his already excellent practice.

Annually as we renew our nursing registration we are required to reflect on our own practice, consider whether or not we are meeting the standards, set learning goals and  request feedback from peers.  In preparation for next year, I am intrigued by the idea of asking a colleague to observe my practice, and provide feedback. Perhaps i will have  an exceptional teacher observe my teaching, and an exceptional clinician observe my clinical caregiving.  I am still thinking about how one might “role play” and prepare for a feedback session. Wonderful opportunities for professional growth and development!

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A few years ago some very dear young friends grieved the death of their mother, followed soon after with the death of their father.  In the months following the deaths they created a CD of sad songs. They titled the CD “CRY CD – USE WITH CAUTION”.  When they wanted to cry, they would go for a drive, plug in the CD and CRY!

The girls gave me a copy of their CDs (Volume 1 and Volume 2!)  I had no idea that there were so many songs about loss and grief, death and dying!  THe songs covered a range of different losses.

When I was teaching a grade 12 Psychology class I was delighted that some of the students picked up the idea of using music to express grief.  A few students wrote their own songs, while others compiled a series of songs that spoke to them about loss.

As a hospice nurse, I used music as a way to assist a person by bringing a spirit of peace, restfulness to the environment.  However I know people who did not want to hear peaceful music, but rather wanted honky-tonk, or loud and boisterous classical pieces.

Years ago I wrote about the need to “Respect the individual and individualize the care!”  As it is with any care, music care needs to be tailored to the individual.

For further information about the online course titled “Music Care: Caring for the dying with music”, this exciting course is starting Feb 25th see http://www.lifeanddeathmatters.ca/Online-Courses/music-care-caring-for-the-dying-with-music.html

Thanks Jen, Heather and Erin for sharing the CD with me!!

xo  Kath

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We are thrilled to be heading to Mexico for a few weeks.  We (Ted and I), get to return to the Palliative Care Unit where I volunteered in 1996 while we lived and traveled in Mexico with our kids.

Ah, the lovely bright colours of Mexico! (Not Guadalajara, but beautiful!)

I am delighted to connect with people who have worked Palliative Care in Mexico – please email me or respond to the blog! :)

The first day is the Anesthetist Congress, and then a few days with medical students, nurses, and public.  Dr. Gustavo Montejo is coordinating the events, and has been a champion for palliative care for 2 decades.

Looking forward to basking in the warmth of the Mexican people once again!

Kath

Say where in Mexico? West of Mexico City...

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Jennifer Wortham, although busy getting ready to teach this course, also manages to pique my curiousity with this short note about loss and grief following the death of someone with dementia.

The Silent Partner: Caregiving, loss and grief

The title ‘the silent partner’ is a play on words. Many caregivers of those who are dying or slowly taking their leave via Alzheimer’s or dementia are silent about the huge responsibility involved and the emotional and physical toll that responsibility takes. However, the silent partner we’re referring to in the title is the impending death and it’s aftermath. Rarely is the caregiver free of that companion.

Once the individual who was cared for dies, the caregiver is left with the huge gaping hole consisting of ‘what now’?  The mix of feelings that silent partner brings can range from relief, deep sorrow, guilt, flashes of joy and anger to name a few. Often the caregiver feels they must keep these secret for fear of being judged.

Learning and understanding what grief holds and how to be an active participant in navigating one’s loss can help.  Participating in Theories of Loss and Grief: Beyond Kubler Ross is a way to explore what we have learned about grief in the last half century. From theories of dual process (finding balance) to continuing bonds (debunking myths of the need for ‘closure’) learners find that having knowledge of the grief process greatly helps their relationship with
their silent partner.

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For years I have wanted to celebrate Community Health Workers and the invaluable and difficult work that they do. (CHWs are known in Ontario as Personal Support Workers, in other areas as Health Care Workers). A few months ago Kathy Ajas and her team at Ross Place joined in on the idea, and together we schemed!

We are delighted to invite all Victoria Community Health Workers to the celebration on March 16th, 1:30-4:30.   More information will follow… We do know that the activities will include: food, festivities, and door prizes.

Any community members interested in donating doorprizes for these incredible people please email us at CHW@lifeanddeathmatters.ca .

If you would like to tell a story about a great Community Health Worker or submit a note of gratitude, please reply to this blog.  We will gather and post any letters or comments we receive.

Join the celebration – tribute these people and the incredible work they do!

Warm regards,

Kath Murray and Kathy Ajas!

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Lisa Krieger wrote this most incredible article, telling the story of her fathers last days.  A day in the garden raking leaves, return to the nursing facility (US), fever, trip to emergency, followed by days of acute intervention.  The story exudes the love and care of a devoted daughter.  The story illustrates the lack of discussion, educaiton, and support for this lovely daughter whose father was living-dying with dementia.   See the link for the story.  My reflections follow.

http://www.mercurynews.com/health/ci_19898736?source=rss

As a daughter, a parent, hospice palliative care nurse, a Canadian, and a Thanatologist,…  I value this story immensely.  Fabulous writing, great images of raking leaves together.  Wonderful family bonds and caring.  So visible.  If only… if only we realized that most Advance Directives should address “the next infection”, the “next round of antibbiotics” rather than limiting our discussion to “DNR” and “No heroic measures”.

Antibiotics are such a common medicaiton, that we forget, that antibiotics often prevent natural death, prolong acute interventions, and invite uncountable expenses, burdens, suffering.

Hospice and Palliative Care support for both the father and the daughter, for both the physocial needs and the physical comfort  needs, could have provided a wonderful end to a glorious memory of working in the yard.  How wonderful to have been able to say, “We worked in the garden together, …. he got sick, the nursing home staff talked to us about how normal it is for those dying with dementia to die of an infection, we realized that this was a major infection, and considering what he might have said in this conversation… we chose not to transfer him to emergency.  Family were phoned, some were able to gather, and we cared for him in his “home”, he died peacefully with supports from the staff and the hospice.”

My comments are NOT to critique the wonderful loving supportive intent provided by Lisa, but to urge discussion among family, caregivers of people with dementia, and nursing home staff. Hospice palliative care is not just about people dying with cancer.  It is not limited to people dying in hospice/palliative care units.  Hospice palliative care is very appropriate for people dying with dementia! In fact, it can only enhance good dementia care.

I would love to debrief this case with the team in the emergency ward.  From an outside perspective, which is always easier than what one sees in the moment, I would recommend someone from a palliative care team, (either a nurse physician or counselor) meet with Lisa and her father,  review the past months/weeks, review his preferences, alert her to the challenges of “acute intervention”, and provide information about what a hospice palliative approach could offer.  Then, Lisa would have been able to make a more informed choice.
All the best Lisa, and thank you so much for sharing a story of love and caring. And providing a teaching tool for us all!
Kath Murray

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The week of Feb 5th is International Coaching Week (ICW)!

Lucky for me, I got to be a guinea pig a few years ago when my dear friend Sarah Evans was involved in the Coaching Program with Royal Roads.  I got to witness first hand the benefits of coaching.  The thing I like most about Sarah and her approach to coaching and to life, is the positive inquiry, the simplicity and charm with which she works, and the wonders that she sees in life.  I think that part of that comes from this coaching approach.  These sessions could do nothing but strengthen team and inspire individuals.

Sarah is VP of the local Victoria chapter of the coaching federation.  They have organized some great events for coaching week, both face to face (half day workshop) and webinars (sit at home in your pj’s and listen in).    You may want to check out their offerings for the public that week. There may be something of interest to you and/or your colleagues: http://www.vicoaches.org/upcoming_events.html

Oh, and our dear SHAWNA FENWICK who taught the Leadership course with LDMonline is presenting one of the webinars!  Her webinar, “Glow: radiating energy, innovation and success!” is booked for Monday, February 6, 2012 from 7:00 PM to 8:00 PM (PT)

Happy Days!

Kath

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Hi!

I am enjoying a “TED TALK” by this youtube video with Salman Khan tell about how he helped his cousins learn by making you tube videos about the school subject for them.  It was so successful that he started doing more teaching videos.  His resources remind me of what we have tried to accomplish by developing the podcasts.  In theory the students can listen to the podcast before class, then come to class and the students and the teachers can explore the practical application of the theoy presentedin the podcasts.

In summary, the students are given homework which includes listening to the video… and then the students come to class and get to work on materials with the help and support of the teachers.  So what was once done at home is now done at school and what was done at school is now done at home.  Students can keep listening to the videos until they “get it”.  Teaching is done online by someone who is passionate about their material and experienced in teaching the subject.  Great stuff!  Reminds me of what we have tried to make available to teachers and students with the development of our podcasts… a way for the students to get the lecture material online, and then attend class to discuss how to “integrate theory in practice.”

http://www.youtube.com/watch?feature=player_embedded&v=gM95HHI4gLk

“How to humanize the classroom through use of technology”

Kath

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I hear people use the term”Palliative Sedation Therapy” without understandig what it really means.

This online course taught by Susan Breiddal and Dr Peter Kirk will help you explore the definitions, recent discussions, and identify the concerns and guidelines for PST.

Join a great group of diverse online learners.  From Personal Support Workers to Nurses and Social Workers…. this is a group ready to engage in discussion.

http://www.lifeanddeathmatters.ca/Online-Courses/palliative-sedation-can-we-talk-about-itq.html

Forget your fears and come and play in the playground of online education!

Contact Ted to help you register if you need help, info@lifeanddeathmatters.ca  .

Kath

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